What is ALS ?
A rare Motor
neuron Disease
Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, is a progressive and fatal neurodegenerative disorder that attacks motor neurons in the brain and spinal cord. These neurons control essential functions like walking, speaking, swallowing, and breathing.
As ALS advances, muscle control deteriorates, leading to paralysis and the loss of basic abilities—while cognitive function typically remains intact. Most patients stay mentally alert as their physical condition declines, adding a heavy emotional toll.
There is currently no cure. Treatments focus on slowing progression and easing symptoms. However, promising research—including gene therapy, stem cells, and neuroprotective drugs—is offering hope for the future.
Mission
Funding Research, Inspiring Hope, supporting Athletes.
Supporting innovative projects to bring us closer to a cure.
Sharing the ALS story with a global audience, one race at a time.
Creating opportunities for professional athletes to make a difference.
Who we are
Driven by Purpose. Guided by Science. Rooted in Hope.
We are a Swiss-based non-profit association dedicated to advancing the fight against ALS.
Headquartered in Geneva, our organisation is built on a foundation of transparency, scientific rigor, and impact. We fund cutting-edge ALS research through a structured and accountable framework supported by a dedicated board and a multidisciplinary scientific committee. Our mission is clear: accelerate the development of effective treatments and, ultimately, a cure.
As we begin our funding efforts, we are focused on identifying research initiatives with strong scientific merit, innovation potential, and relevance for patients. We aim to build collaborations with leading researchers, institutions, and partners who share our commitment to transforming the ALS landscape.
We are more than an association—we are a growing movement focused on driving progress. Your donation helps fund the research that brings us closer to a cure.